‘Patient centered mobile health technology to improve self-management and health outcomes in children and adolescents with kidney transplants.’
Westmead Childrens Hopsital
University of Sydney, NSW
Co-funded by Rotary District 9650
‘Jack Wilson’ Kidney Research PhD Scholarship
“mHealth has been shown to be effective in doubling odds of medication adherence in chronic disease setting, but currently only has limited data in solid organ transplant setting.”
A summary of this work involves 3 aims:
Aim 1 To determine the current efficacy, evidence and gaps in knowledge of eHealth intervention in post-transplant care
Understanding the current evidence and gaps
This will involve gathering evidence through systemic review (and meta analysis) to rigorously evaluate and assess the current evidence and understand the effectiveness, benefits and risks of eHealth interventions in solid organ transplant recipients and caregivers. In addition, the perspectives and experiences of patients and caregivers on medication taking will be established.
Aim 2 To describe the attitudes, beliefs and perspectives of patients and families and elicit preferences for eHealth interventions in post-transplant care
Understanding the goals and preferences patients/families/stakeholders
Focus groups will be conducted in patients and caregivers to understand the perspectives of eHealth in post transplant care. In addition, a ‘discrete choice experiment’ will be conducted to elicit patients’ and caregivers’ preferences and attributes of eHealth interventions, and the reason behind choosing one option over another.
Aim 3 To develop and pilot an mHealth intervention a cohort of children and young people with kidney transplants
Ideas to implementation – Piloting an mHealth intervention
A pilot study of a text messaging based intervention for adherence and health promotion in children and young people with kidney transplants will be conducted. In addition, process evaluation framework will be conducted to assess ‘intervention fidelity’ (whether the intervention was delivered as intended), feasibility and usability by understanding enablers and barriers influencing implementation.
Supervisors: Associate Professor Germaine Wong, Associate Professor Allison Tong & Dr Martin Howell